Page mise à jour le 16 juin 2021

The AMVF links

1. AMVF Presentation: our aims, how do we operate
2. Our Diseases
3. Medical Research
4. Glossary
5. The AMVF links
6. Help us, Make a donation

 

5. The AMVF links

 

Strength through unity. AMVF is member of AMR and EURORDIS well known organisations very active in the field of Rare Diseases.
In addition, AMVF is registered to ORPHANET.

Other associations or organizations share our concerns. We strongly recommend that you visit their websites. Unfortunately not all of these websites are bilingual.

A.M.R. www.alliance-maladies-rares.org

AMR is the French Organisation for Rare Diseases, it is a patient-driven alliance of French patients organisations active in the field of rare diseases. AMVF is member of AMR. AMR is member of Eurordis.

EURORDIS www.eurordis.org

The European Organisation for Rare Diseases, EURORDIS, is a patient-driven alliance of patient organisations and individuals active in the field of rare diseases. AMVF is member of Eurordis.

ORPHANET www.orpha.net

ORPHANET is a database dedicated to information on rare diseases and orphan drugs. Access to this database is free of charge.

        FILFOIE  www.filfoie.com

This sector was set up in order to pool resources and coordinate expertise at national level on all rare adult and paediatric liver diseases. The main objective of the Filfoie sector is to develop and coordinate the implementation of transversal actions aimed at harmonizing and improving the diagnostic, therapeutic and medico-social care of patients and at strengthening research activities in the field of rare liver diseases.

A.F.E.F. www.afef.asso.fr

AFEF is a "learned society" which the aim is to promote the hepatology discipline in the French- speaking areas.

S.N.F.G.E. www.snfge.asso.fr

The SNFGE is the French reference center dedicated to hepato gastroenterology discipline.

EN-Vie

Consortium of Web sites covering a large spectrum of subjects, including medical.


Page précédente : Nos partenaires